I first started talking to conservative blogger Michael Illions last year around this time when I found out about his family’s fight against Hydrocephalus and their wonderful son Cole. I did a post at the time publicizing the hydro-walk 2008. It’s a year later now and I’ve stayed in touch with the Illions family as they continue their efforts raise awareness and funding for the disease.
Earlier this year, they were successful in getting a resolution passed by the House designating September as “National Hydrocephalus Awareness Month.” Here is a video that the Illions put together with Congress members Leonard Lance and Michele Bachman to help lobby members of Congress before that bill was passed, that introduces you to Cole and talks about what they are fighting for:
And here is the information about this year’s walk:
PHF WALK 2009
“Funding a Cure for Hydrocephalus”
September 13th, 2009
Rt. 1 South
This year we are pleased to announce that our Honorary Chairman will be Bill Evans from ABC Channel 7 Eyewitness News!
Join us for a 2 mile WALK around the beautiful lake located at Roosevelt Park to raise money and awareness to help “fund a cure” for Hydrocephalus. All proceeds to benefit the Pediatric Hydrocephalus Foundation, Inc.
According to Michael, Senator Vitale is attending and Congressman Lance’s people are trying to work out for him to be there as well. Other officials from both sides of the aisle that have assisted along the way have been invited as well. I know that often times we go after the other side of the aisle, but sometimes issues like this are more important than poliics. You can help Cole and other families struggling with this disease by making a contribution online, raising attention or registering to attend the walk online. Thanks for your help and you can learn more about their fight at hydrocephaluskids.org